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My MS Journey: Get Healthy, or Die Trying


Get Healthy or Die Trying Here's my multiple sclerosis experience. Every MS patient is different; this is one data point. Mountain biker/hiker and business entrepreneur at 38. Diagnosed at 38 after getting an odd cold sensation on my lip. Most/all lesions on brain stem and spinal cord. Lesion location matters. Disability rapidly progressed. Went on Copaxone injections 3 years, Tysabri biologic IV therapy 18 months. Went to Mayo with a cane, was told I would be unable to walk or travel by 50. I decided to ignore those instructions and find a way to get healthy or die trying Decided risk/benefit of biologic drugs wasn't for me and went back on Copaxone. Decided to find a better path. Worked with functional medicine MD, fixed Vitamin D3 and such, cut most gluten and dairy, added low dose naltrexone. Progression slowed, business grew. On 50th birthday, took a selfie walking (with a cane) in Europe. Had to prove a point. Started using a wheelchair for long distances at 51. Began Wahls Protocol diet for MS. Progression stopped. Backed off business some and started teaching at university. 55 now. Diligent with Wahls. Added medical cannabis plus Lions Mane and similar mushrooms to diet. Had an allergic reaction to injection med and have stopped for now. Recently went on disability, using it as opportunity to rebuild. Teach part-time at university as full-time eventually became impossible with symptoms. Still use wheelchair for distance, but ride 100+ miles a month on recumbent exercise bike. I do balance and strength work too. My takeaways? It's very hard to recover what is lost; If you have MS or a similar chronic condition, act now. Get very serious about diet and exercise. Find a good functional med doc. Evaluate risk/reward of new med developments. Pharma companies can be an ally, but they're not a trusted friend. Adapt. Push your limits, but respect sometimes backing off is the smart, sustainable move. Keep a positive attitude, no matter what. You can have great quality of life with chronic illness, but it's a choice. My approach is Get Healthy or Die Trying. Hope that’s helpful. Wishing the best for you in health and life!

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